We Can Do It Together

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We Can Do It Together

I sat at a nearby bar long after the fundraiser was over talking with Jean.  We talked about the joys and the struggles of raising a child with special needs.  As we talked, I was reminded of my own experience after Taylor was diagnosed in January of 2018. After the initial impact of receiving an official diagnosis, I wanted to know how I could help.  I wanted to find out as much as I could about the condition. I wanted to connect with other families.  I wanted to raise awareness for a genetic condition so obscure, only 300 people are diagnosed to date.  I wanted to do EVERYTHING I could to set Taylor up for success.  

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Fighting for Change

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Fighting for Change

Writing this post is really difficult, because it plays to one of my worst fears as a parent of a child with special needs.  The timing is ironic, as I literally just sat with a friend in a coffee shop over the weekend and shared this fear….that my daughter, Taylor, will be treated poorly or subjected to verbal or physical abuse, and that I will not know about it. Every parent fears this, but it is most concerning to me because my daughter is nonverbal. She would have no way of telling me what happened.

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10 Tips for Supporting a Parent of a Child with Special Needs

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10 Tips for Supporting a Parent of a Child with Special Needs

Not sure how to support your loved one who has a child with special needs?  You are not alone.  Most people are unsure about how to respond to a family when they receive a potentially devastating diagnosis.  You may not know what to say or how to help.  You may feel the relationship growing distant and not know why.  Although you may feel uncertain about what to do, there are many ways you can support a parent of a child with special needs, and let me tell you, we NEED your support….now more than ever. 

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